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XLH Event

Come and join us at an event to learn more about XLH and connect with local XLH community.

Event calendar

October 2022

SUN
23 OCT

International XLH Awareness Day – Shine A Light On XLH
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Join us this October 23rd, 2022, to celebrate the launch of Shine A Light on XLH Virtual Exhibition in conjunction with International XLH Awareness Day (23rd October 2022) as we share with you the experiences and stories of 11 amazing people living with X-Linked Hypophosphatemia (XLH) – a rare lifelong skeletal disease that is caused by a lack of phosphate, affecting about 1 in 20,000 people.1

Mark your calendar and stay tuned for the launch on 23rd October 2022!

References : 1. Beck-Nielsen SS, Mughal Z, Haffner D, et al. FGF23 and its role in X-linked hypophosphatemia-related morbidity. Orphanet J Rare Dis. 2019;14:58.

AP-NP-22-00025 OCT2022

Details

Sunday 23rd October 2002

Website

Other

Event Type

International XLH Awareness Day

Event Topic
Shine A Light on XLH
Conditions
X-Linked Hypophosphatemia

SUN
23 OCT

International XLH Awareness Day – Shine A Light On XLH

We are pleased to announce the launch of ShineALightOnXLH Virtual Exhibition in conjunction with International XLH Awareness Day (23rd October 2022) as we share with you the experiences and stories of 11 amazing people living with X-Linked Hypophosphatemia (XLH) – a rare lifelong skeletal disease that is caused by a lack of phosphate, affecting about 1 in 20,000 people. 1
The launch of Shine A Light on XLH Exhibition website aims to deliver a meaningful message, to increase awareness and understanding of the impact of XLH on people’s lives.

References : 1. Beck-Nielsen SS, Mughal Z, Haffner D, et al. FGF23 and its role in X-linked hypophosphatemia-related morbidity. Orphanet J Rare Dis. 2019;14:58.

AP-NP-22-00025 OCT2022

Details

Sunday 23rd October 2002

Other

Event Type

International XLH Awareness Day

Event Topic
Shine A Light on XLH
Conditions
X-Linked Hypophosphatemia

XLH Link - HCP Website

This Kyowa Kirin website is intended for Healthcare Professionals (HCPs) involved in the care of people with X-linked Hypophosphatemia (XLH).

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